Dyslexia and Me: I is for I, Myself and Me
Posted by ainemosh
I am now vainly writing about myself for #blogging4charity. Well, to be fair, the whole blog is based on my experiences with dyslexia, so perhaps the entire blog is vanity! Who knows why I assumed people would be interested in reading about my life!
I started this blog earlier this year in hope to raise awareness of both dyslexia and scotopic sensitivity syndrome. It has been a very interesting journey so far and I have learnt a lot! There were many topics I decided to approach wondering if it really was something linked to dyslexia, or if it was just me! My blog on ‘Socialising‘ instantly springs to mind. I’ve also enjoyed sharing my moments of absolute joy, such as getting a first for my dissertation and graduating from university as well as the struggles I’ve had over the years. It’s almost like therapy!
Being able to be as open as I have has led to a lot of very positive feedback. All of which I have been truly humbled by! I’ve really enjoyed talking to other people with similar experiences to my own. I guess it is far easier to understand what dyslexia is and what it means through reading or hearing the experiences of people who have first hand experience. I’ve read a lot of very dry and boring articles on dyslexia that I read half of and completely switched off. I hope my blog doesn’t bore people to that extent!
Talking of boring people with my blog… Here’s a funny story from yesterday. My short-term memory is terrible. I just got up to turn the heating off after forgetting I had literally done it 10 minutes ago. Back on topic… Yesterday I was getting dressed to head out to the shops. My room, a mess as always but more so after our moving in, has items of clothing on the floor. As I went to put on my bra, I realised I had already put one on 2 minutes earlier and wondered why (while looking across the room) it didn’t feel right! I didn’t realise there had been two bras sat on the floor next to each other or had any recollection of putting the first one on. FML!
Where was I? Raising awareness! Yes, so I thought it would be a great idea to share my experiences as I had managed to come full circle, from hating an education system that was letting me down, to working and then back into education at a later stage in life and LOVING IT! I thought, ‘there might just be someone out there who’s been through the same as me that needs that little bit of inspiration to go back into education to follow their own dreams!’ From the feedback I’ve had, there are a fair few people who have been through the same as I have! I don’t know whether I’ve inspired anyone though (that would be lovely though).
I actually started blogging to write about music. It’s my big passion in life. I was writing a lot for my music blog, but realised it was taking up so much of my time looking into different bits and pieces. So I’m actually surprised at myself keeping up with this blog! I have all these wonderful ideas that all seem to go awol after a few months. I think I get bored too quickly… But I have managed to keep going in the hope that some of what I’m saying reaches people that are coming to terms with dyslexia, or educators/employers who really need to readdress how dyslexic people are treated.
I’ve been so lucky to have a number of dyslexia groups, educators, experts and other advocates respond to my blogs either on the page or through social media. LOADS of wonderful dyslexic people have been in touch too! And I’ve made a lovely network of interesting connections through Spectrum Bloggers Network and the SEN community on social media. It has generally all been a very positive experience.
While the dyslexia side of the blog has been positive, the scotopic sensitivity syndrome (Irlen Syndrome/visual distortion/Meares-Irlen Syndrome or whatever you want to label it as) stuff has been more complex. I’ve been met with a lot of extremely rude, obnoxious and self-righteous people when I mention Irlen Syndrome. I steer away from their groups on Facebook and people on Twitter. I posted up last week on one group that I was amused that there was going to be an awareness week for Irlen Syndrome because I had blogged about that very topic back in March! “Preparation was well on the way then”. Well sorry!!! There was absolutely nothing online about such a thing when I was blogging about it at the start of the year! Be grateful that there are people who actually care and are willing to raise awareness!
I also get fed up of being told I should get coloured lenses. They work for some but not all. Several experts told me that they wouldn’t be right for me. I actually ended up going to a specialist when getting my new glasses who had been trained with Irlen Syndrome methods and the coloured lenses and had moved away from it. We went through loads of different tests and eventually opted to have prisms put into my glasses instead. They seem to have had only a small impact on my reading, though my headaches/migraines have vastly reduced! It seems to me that these people don’t want you to talk about how it affects you or to share your views because it’s all an elaborate scam to get money out of people. Perhaps I’ve just had terrible experiences with every single Irlen Syndrome person or group I’ve come into contact with! (Kerrching!) It’s all been so money driven that I have become sceptical of the ‘treatment’ through coloured lenses, although I know the condition itself is very real.
I’m not afraid to share my experiences good and bad. I hope that it helps to reassure people who have recently been diagnosed with dyslexia, or for those who didn’t realise that there are a lot of quirks we share! Those things that we thought were superpowers are actually just part of our dyslexia.
So thank you for reading my blog, sending me comments, talking to me on Facebook groups or through Twitter, Reddit etc. It isn’t boosting my ego through being so vain, but helping me on my own journey to understanding dyslexia as I was only diagnosed with it 5 years ago myself.
So please help me to raise money through this #blogging4charity stint I’ve been doing (the last one is tomorrow) by donating to the charity I have picked this quarter. I really hope to see dyslexia charities given more support so that they can help other dyslexic people like myself. I would be eternally grateful and I’m sure my chosen charity would love the extra dosh to use in their ongoing work too!
This post is part of a series trying to help me to raise money for Dyslexia Action. You can donate as little as £1! To find out more, head over to: https://www.justgiving.com/DyslexiaAndMe
Posted on September 5, 2014, in Awareness, Blogging, Personal Experience and tagged #blogging4charity, Dyslexia, Irlen Syndrome, Meares-Irlen syndrome, Scotopic sensitivity syndrome, Social Media, Vanity, Visual Stress. Bookmark the permalink. 1 Comment.