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Dyslexic Adults: GET INVOLVED!

I mentioned in my previous blog about a dyslexia group that I am a member of on Facebook called Dyslexia Help and Support UK. I’m a huge advocate for the group because I have found them to be very friendly, very helpful and very supportive especially (but not exclusively) towards parents in the UK with dyslexic kids. Read the rest of this entry

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Dyslexia and Me: Beyond Words

I’ll tell you what, it’s bloody hard work trying to bring people together! It’s beyond words! Read the rest of this entry

Question of the Month

This month the poll is a statement that is very close to my own heart. So what do you think?

Dyslexia and Me: Scotopic Sensitivity Syndrome/Irlen Syndrome Awareness Day?

A ribbon of my own design. The blue signifies dyslexia awareness while black and white are shades that I find especially difficult to look at. The coloured dots are my 'pixel vision'

A ribbon of my own design. The blue signifies dyslexia awareness while black and white are shades that I find especially difficult to look at. The coloured dots are my ‘pixel vision’

There are a number of events throughout the year raising awareness for dyslexia. The recent ‘guerilla’ campaign by Decoding Dyslexia to raise awareness through the tag #ShowMe1in5 through social media seems to have been pretty successful (there are still people sharing the links on Twitter a I write this blog). Also Dyslexia Advocacy Week has just passed where I shared a video per day featuring a variety of dyslexic people talking about their experiences and their progression and success. However, I want my blog to cover not only dyslexia, but also Scotopic Sensitivity Syndrome aka Irlen Syndrome. Having searched on Google (as you do) I have been unable to find a specific day or week dedicated to raising awareness on this specific learning difficulty that has links to dyslexia. So for this reason, I have decided to set aside this weeks blog to discuss Scotopic Sensitivity Syndrome in hope to raise awareness of what it is!

While 1 in 5 may have dyslexia, it has been suggested that 1 in 7 or as many as 1 in 6 of the population are affected by Scotopic Sensitivity Syndrome. So here are some facts and issues linked to Scotopic Sensitivity Syndrome to hopefully give you a better understanding of this specific learning difficulty. Read the rest of this entry

Important: Petition | Make Dyslexia diagnosis easier for children to get. | Change.org

via Petition | Make Dyslexia diagnosis easier for children to get. | Change.org.

I think this is a very important petition for people concerned about dyslexia to sign. I struggled with school because my school refused to have me diagnosed with dyslexia because it was ‘too expensive’. I would hate to see this trend continuing and urge you to sign this petition to make it easier to diagnose kids with dyslexia.

Under the current system in the UK there are many families who struggle for years to get their children properly and formally diagnosed with Dyslexia. Local Authorities are reluctant to send a child to an Educational Psychologist due to funding restrictions and tightening school budgets. If a school is meeting a child’s educational needs then they have no reason to request a formal diagnosis. However if a parent goes to their GP and requests a referral to a Educational Psychologist for a formal diagnosis the GP says they cannot as it is not covered by the NHS. The GP also mistakenly thinks a parent can simple requests the school to refer the child for one. Hence parents are left going round in circles. Many parents are frustrated with the current system and are left with their child undiagnosed or facing an independant diagnosis from a Educational Psychologist costing them a few hundred pounds. Even when parents do get this ‘independant’ diagnosis some parents are told that it is still not accepted by some as “they have paid someone to say their child has Dyslexia”.

Unless the government are prepared to change the current system many individuals will be left undiagnosed and not receiving the help they need! Any other learning difficulty diagnosis is funded by the NHS not parents. Dyslexic children have to pay privately to get a diagnosis.

I only understand all these difficulties due to going through this battle with my own child and know of other families in the same situation, therefore I ask you all to sign this petition to raise awareness of this unfair system.

Dyslexia Advocacy Week 2014: Dyslexic Advantage – Blake Charlton Physician and Fantasy Author

Blake Charlton discusses another side (‘the Dark Side’) of dyslexia and helps to conclude the videos I have shared for Dyslexia Advocacy Week 2014.

Hopefully through all the videos I have shared with you this week from various sources available through Youtube I have shown the positives that exist even with the diagnosis of dyslexia.

Dyslexia Advocacy Week 2014: Dyslexic Advantage – Dinosaur Hunter Jack Horner

This presentation by Professor Jack Horner is inspiring, interesting and funny. Now where did I put my hammer?

Dyslexia Advocacy Week 2014: Orlando Bloom on what he did to overcome his dyslexia as a young actor

Orlando Bloom discussing how he overcame dyslexia as a youngster.

Dyslexia Advocacy Week 2014: Steven Spielberg discusses his dyslexia for the first time ever, on 12 September, 2012 – Interview by Quinn Bradlee

Another inspirational interview by Quinn Bradlee, this time with director Steven Spielberg and finding the missing piece of the puzzle, dyslexia.

Dyslexia Advocacy Week 2014: Overcoming Dyslexia, Finding Passion: Piper Otterbein at TEDxYouth@CEHS

This TEDxYouth Talk with Piper Otterbein is another inspiring story from a young woman overcoming her dyslexia!

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